Research Projects & Grants

College/University

  • Sweat Testing in Cystic Fibrosis (CF) in Newborns Detected by Screening, Role: Principal Investigator, Stanford University, (03/2011 - 06/2013) Status: Closed

Federal

  • "Collection of Gene Mutations for Laboratory Quality Assurance” Newborn Screening Accuracy Project, Role: PI, Centers for Disease Control and Prevention/DHHS, (09/2024 - 09/2025) Status: Approved

For Profit Organization

  • An Interview Study Designed to Identify, Describe, and Substatiate Important and Relevant Concepts Related to (1) the Signs, Symptoms, and Impacts of Low Grade Upper Tract Urothelial Carcinoma (LG UTUC); (2) Treatment Burden and Patients' Current Treatment Experiences for LG UTUC; and (3) Perceptions of UGN-101 Treatment, from the Perspective of US-based Adults with LG UTUC, Role: Principal Investigator, Adelphi Values LLC, (10/2019 - 10/2020) Status: Closed
  • A post-approval observational study to evaluate the long-term effectiveness and safety of Orkambi in US patients who completed study VX12-809-105 part A, Role: PI, Vertex Pharmaceuticals Incorporated (Vertex), (04/2018 - 04/2019) Status: Completed
  • A phase 3, rollover study to evaluate the safety and efficacy of long-term treatment with lumacaftor in combination with ivacaftor in subjects aged 12 years and older with cystic fibrosis, homozygous or heterozygous for the F508del-CFTR mutation (Vertex study number: VX12-809-105), Role: PI, Vertex Pharmaceuticals Incorporated (Vertex), (01/2016 - 01/2017) Status: Completed
  • A phase 3, randomized, double-blind, placebo-controlled, parallel-group study to evaluate the efficacy and safety of lumacaftor in combination with ivacaftor in subjects aged 12 years and older with cystic fibrosis, homozygous for the F508del-CFTR mutation, Role: Investigator, Vertex Pharmaceuticals Incorporated (Vertex), (05/2014 - 05/2015) Status: Completed

Internal

  • Genomic diversity of Pseudomonas aeruginosa at Loma Linda University in patients with Cystic Fibrosis, Role: Investigator, LLU Dept. of Pediatrics, (01/2020) Status: Approved

Non-Profit Organization

  • Cystic Fibrosis Foundation - National Patient Registry Database, Role: PI, Cystic Fibrosis Foundation, (11/2024 - 11/2025) Status: Approved
  • Cystic Fibrosis Foundation, Role: PD/PI, Cystic Fibrosis Foundation, (07/2021 - 06/2022) Status: Awarded
  • Cystic Fibrosis Foundation - Patient Registry Data Base, Role: PD/PI, Cystic Fibrosis Foundation, (07/2019 - 06/2021) Status: Closed
  • Cystic Fibrosis Foundation Care Centers, Role: Principal Investigator, Cystic Fibrosis Foundation, (07/2018 - 06/2019) Status: Closed
  • Cystic Fibrosis Foundation-National Patient Registry Database, Role: Principal Investigator, Cystic Fibrosis Foundation, (07/2017 - 06/2018) Status: Closed
  • Cystic Fibrosis Foundation-National Patient Registry Database, Role: Principal Investigator, Cystic Fibrosis Foundation, (07/2016 - 06/2017) Status: Closed
  • Cystic Fibrosis Foundation National Patient Registry Database, Role: Principal Investigator, Cystic Fibrosis Foundation, (07/2014 - 06/2016) Status: Closed
  • Cystic Fibrosis Foundation-000068CC324, Role: PD/PI, Cystic Fibrosis Foundation, (07/2024 - 06/2025) Status: Awarded
  • Cystic Fibrosis Foundation-000068CC323, Role: PD/PI, Cystic Fibrosis Foundation, (07/2023 - 06/2024) Status: Awarded